About

Mission

The PHTS Foundation’s mission is to raise and administer funds to advance the science and treatment of children while listed for and following heart transplantation. The Foundation supports the good works of the Pediatric Heart Transplant Study (PHTS).

Fast Facts:

  • There are about 500 pediatric heart transplants every year world-wide.
  • Most infants (< 1 year old) that get a transplant have congenital heart disease.
  • Most older children that get a heart transplant have cardiomyopathy.
  • Increasing numbers of children are getting supported by a mechanical device to wait for a heart transplant (14% in 2011 worldwide, 30% in North America).
  • Survival continues to improve after a pediatric heart transplant. Over 80% of children are alive 5 years after their transplant. For babies, over 50% are alive 19 years after their transplant.
  • About 30% of patients have rejection that needs to be treated in the first year after the transplant.
  • Coronary artery vasculopathy (narrowing of the coronary arteries) is still the biggest cause of death long term after the heart transplant.
  • There is a lot to learn about problems after a heart transplant in children to improve quality of life and survival of these patients.

Board of Directors

Officers

Chair
Robert Gajarksi, MD
Nationwide Children’s Hospital
Columbus, OH
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Vice Chair/Secretary
Melanie Everitt, MD
Children’s Hospital Colorado Heart Institute
Denver, CO
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Executive Director
Craig Collum, MPH (Ex-Officio)
University of Alabama at Birmingham
Birmingham, AL
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Board Members

Jim Kirklin, MD
University of Alabama at Birmingham
Birmingham, AL
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Michael Kuhn, MD
Loma Linda University Medical Center
Loma Linda, CA
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Rebecca Ameduri, MD
University of Minnesota Masonic Children’s Hospital
Minneapolis, MN
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Mariah Strickland, RN
Children’s of Alabama
Birmingham, AL
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Maryanne Chrisant, MD
Joe DiMaggio Children’s Hospital
Hollywood, FL
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Patrick Gahan
Enduring Hearts
Marietta, GA
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William Dreyer, MD
Texas Children’s Hospital
Houston, TX
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Mike Paseornek
Lion’s Gate Entertainment
Santa Monica, CA
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Jay Fricker, MD
University of Florida, Shands Hospital
Gainesville, FL
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